Cerebra is the charity dedicated to helping families with children with brain conditions discover a better life together. These families face challenges every day. Just to learn, play, make friends, enjoy and experience the world can feel difficult, even impossible. But we don’t believe there is any challenge that can’t be overcome.
Cerebra use ‘brain condition’ to describe any disorder or disability that affects the brain, including those caused by illness, genetics or traumatic injury. Brain conditions include (but are not limited to) autism, ADHD, Down’s syndrome, learning disabilities, cerebral palsy, epilepsy and developmental delay.
Public bodies have certain legal duties to provide health, social care and other services for disabled children, but families can find it difficult to access these services. Cerebra was awarded a research grant to the School of Law, University of Leeds to run a research programme called “Delivering legal rights: practical problem solving”. Professor Luke Clements leads the programme. The research programme started at Cardiff Law School in 2013 and moved to the University of Leeds in January 2016, where Professor Clements is the Cerebra Professor of Law and Social Justice. The programme has identified the common legal problems that prevent families getting access to services and to find ways of solving those problems. An innovative education and dissemination programme has been developed which has included publishing an Accessing Public Services toolkit and running workshops which accompany the toolkit.
To date there have been 77 workshops across the UK, all with very positive feedback. Feedback received from these includes:
‘The training was very useful and highlighted to me how much I roll over when asked. I now feel empowered to be able to get those things which my son needs.’ Parent with son with autism
‘I found the information really helpful also and feel sure it will help me support our families better in tackling some of the issues we discussed.’ Family Support Worker, REACH Lanarkshire Autism
By the end of the workshop, parent/carers will be able to:
Identify commonly occurring problems facing families accessing services and recognise different types of dispute
Come up with problem-solving approaches to these problems
Use a number of template letters when corresponding with public bodies
The workshop includes working on case studies relating to direct payments, respite care, Disabled Home Adaptations, residential placements and school transport.
This workshop has accredited by the CPD Certification Service. This means that the workshop has reached the required Continuing Professional Development standards and benchmarks and that the learning value has been examined to ensure integrity and quality.
We welcome any suggestions for events, speakers, topics etc – so if you have any ideas for the group, please do contact us.
To see the meetings we held in 2017 click here.
Ever wondered how to get the most out of public services for your child? Or how to approach a dispute about what's best for them?
We will be hosting a charity run by Cerebra in March.
Places are free (an inexpensive lunch is available from the Centre Cafe) but places are limited, so please book by clicking on the button to the right..